Epidermolysis bullosa and contact lenses

Epidermolysis bullosa is a disease categorized by extremely fragile skin that easily blisters, tears and sometimes webs together. Scarring of the skin tissue is frequent and recurring, even from the slightest or gentlest touches. For People with epidermolysis bullosa, contact lenses can be worn, but it’s a good idea to speak with you or your child’s eye doctor before trying them. For patients with epidermolysis bullosa, contact lenses, which not only help the wearer see better, but also assist patients who have corneal erosions and ulcerations are recommended.

Many children with this disabling disease do not reach their 30th birthday. While there is no cure for epidermolysis bullosa yet, and it is a very rare condition (so rare that doctors may go a entire lifetime without ever encountering a epidermolysis bullosa patient), there are a few treatments that can ease the patient’s suffering.

Because the effects of this debilitating disease are so far-reaching, it is not surprising that epidermolysis bullosa, abbreviated as EB, affects the eyes. Common problems concerning the eyes include: conjunctivitis, blepharitis, corneal erosion, and ectropion. Conjuctivitis causes redness, pain and eyelid swelling among other symptoms. Blepharitis may cause the patient’s eyelashes to fall off, or a crusty inflammation to form between the eyelids. Corneal erosion typically occurs in conjunction with skin blisters throughout the surface of the body, and may include red eye and inflammation of the cornea. Ectropion is an extremely rare condition, even for sufferers of epidermolysis bullosa. It occurs when an eyelid turns outward. Luckily, not everyone with epidermolysis bullosa will have eye problems or need contact lenses.

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